Friday, June 20, 2014

The Other Side

We're on the other side...we've made it through the really icky part.  As I write this, I'm sitting on my parents front porch, feeling the breeze and being thankful that we are able to be 650 miles from home and his doctors and therapists and nurses and...!

This past year has been all sorts of things. We moved from all who we love and all that was familiar. We had a super hero baby who has made it through all sorts of odds. (And continues to do so) :) We've started experiencing the "firsts" that new parents experience the day they come home from the hospital with a healthy baby that we just took a little longer to get to.  Babbling, clapping, sitting up, going out to eat, swimming, vacations, and so many more! We still don't have it "easy", but it's getting there.  When I look at the feeding tube on his face, it's still a source of frustration and continued hard work. However, when I think about the big picture, I can handle some feeding problems if it means we're at home dealing with these issues, rather than being in the hospital for bigger reasons.

We're so glad to be where we're at. It felt like we would never get here. Some days, it feels like we'll never have a baby who eats by mouth, but I know we'll get over this hurdle too. Eventually. For now, we're grateful for the steps we're making toward our normal "non-hospital" life.

Here's some photos of our life on the other side. :)

Sitting up like a big boy!

First airplane ride! Handled it like a champ!

First swim!


Helping Mom do some grocery shopping :)

Going out to eat!


Clapping! Yay!

Standing!!

These things may seem trivial, but we try not to take the little things for granted around here.  He's gone through a lot to get to these milestones! Hooray for normal life on the "other side"!